About the EAU Patient Office

Partnering closely with the European Patient Advocacy Group (EPAG), the EAU Patient Office works to ensure that patients and advocates are central to the development of clear patient information, as well as efforts to raise awareness and enhance education.

The EAU Patient Office plays a crucial role in fostering greater collaboration between patients, healthcare professionals, and policymakers, ensuring that the patient perspective is fully integrated into all EAU activities.

Representatives of our EPAG member organisations include:

• Mr. Alex Filicevas – World Bladder Cancer Patient Coalition (WBCPC)
• Ms. Anna De Santis – European Reference Network for Rare Urogenital Diseases (ERN eUROGEN)
• Prof. Caroline Moore – EAU Guidelines Board
• Ms. Claudia Ungarelli – International Kidney Cancer Coalition (IKCC)
• Dr. Corinne Tillier – European Association of Urology Nurses (EAUN)
• Dr. Erik Briers – Europa Uomo
• Mr. Ernst Günther Carl – Europa Uomo
• Prof. Evangelos Liatsikos – EAU Education Office
• Prof. Hein Van Poppel – EAU Policy Office
• Ms. Jacqueline Daly – Cancer Patient Europe (CPE)
• Mrs. Jane Meijlink – International Painful Bladder Foundation
• Ms. Mary Lynne Van Poelgeest-Pomfret – World Federation of Incontinence and Pelvic Problems (WFIPP)
• Mr. Rob Cornes – ORCHID
• Mr. Robert Greene – HungerNdThirst Foundation
• Prof. Rodolfo Montironi – Professor of Pathology, Polytechnic University of Marche, Italy
• Prof. Sara MacLennan – Aberdeen University and SDM expert
• Ms. Wendy Yared – Association of European Cancer Leagues (ECL)

The EAU Patient website provides reliable, evidence-based information on urological conditions and treatments, empowering patients and their families to make informed decisions about their care. Available in multiple languages, this information is developed in collaboration with national societies across Europe to ensure accuracy and relevance.

The EAU Patient website aims to give every urology patient in Europe access to clear, reliable, and up-to-date information about their condition and treatment. This helps patients feel more informed, confident, and involved in their care. All materials are based on the latest medical evidence and EAU Guidelines, and are developed with experts and patient input. Over time, the EAU plans to expand this resource to include a comprehensive library of materials, available in multiple European languages, ensuring accessibility and relevance for all.

The EAU Patient Office spearheads multiple Patient-Reported Outcome Measures (PROMs) initiatives, gathering direct insights from patients about their symptoms, treatment experiences, and quality of life. This is crucial for improving urological care, as it ensures that medical decisions and treatment strategies are guided by real patient experiences, leading to more patient-centred, effective healthcare solutions.

Each year, the Annual EAU Congress hosts Patient Day—a dynamic event featuring insightful sessions developed by the EAU Patient Advocacy Group. Established to bring together healthcare professionals and patients, Patient Day fosters open discussions on key patient concerns. By uniting both perspectives in one room, it creates a unique space for meaningful, engaging, and impactful dialogue.

Supporting the Patient Office, the EAU Patient Office Board oversees patient-focused initiatives and projects. The Board consists of:

• Mr. Alex Filicevas – Brussels, Belgium
• Prof. Evangelos Liatsikos (Ex-officio) – Patras, Greece
• Prof. Hein Van Poppel (Ex-officio) – Leuven, Belgium
• Prof. James N’Dow (Ex-officio) – Aberdeen, United Kingdom
• Prof. Dr. Maria Ribal (Ex-officio) – Barcelona, Spain
• Mrs. Mary Lynne Van Poelgeest-Pomfret – Oegstgeest, the Netherlands
• Prof. Thomas Knoll – Sindelfingen, Germany